Patients and families linked to potential mysterious brain disease speak to neurologist Dr Marrero
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MONCTON, NB – I recently traveled to my hometown of Moncton, NB, to report on a potentially mysterious brain disease that has people talking and very concerned.
I spent time with Bonnie Vautour. Her mother Sylvia passed away this spring and was part of a group of 48 people diagnosed with an unknown neurological syndrome. Vulture remembered his mother as a real spitfire, telling me, “She was so full of life, full of laughter and loved her grandchildren. She has played baseball most of her life and has done a lot of stock car racing. “
Vulture’s mother went into rapid decline, initially showing signs of confusion and memory loss. In just a few months, she was referred to neurologist Dr Alier Marrero, who included her in the “cluster”. I asked Vautour about Dr Marrero and she said, “You can’t ask for better bedside manners. Very, very friendly. Just great. You couldn’t ask for a better neurologist.
During our investigation, we spoke to many other patients and families about their experience with Dr. Marrero.
Carol Clark, who is 77 years old and lives with the unknown syndrome, said “as far as I’m concerned, he really is my neurologist and will always be my neurologist.”
Steve Ellis, whose father Roger, 64, is a patient of Dr Marrero. He says, “He recognized the trends, and he did the right thing.”
Staci, whose daughter-in-law Gabrielle Cormier is one of the youngest patients, said: “It’s really important that we speak up for her and let people know how much she appreciates Dr Marrero and her. team.
As patients and their families praised Dr Marrero, the government has distanced itself. Dr. Marrero was not included in the province’s briefings on June 3 and again on October 27.
This week’s briefing came as neuropathology reports related to those who died in the cluster were made public.
W5 spoke exclusively with the neuropathologist who wrote these reports, Dr Gerard Jansen. He told me “our job is to give a diagnosis with as much certainty as possible. And also say what is not there if we cannot find something.
Dr Jansen found that everyone he had investigated had died of normal brain diseases.
He made a point of expressing this to the families: “I am not saying that people are not suffering or that there is no disease. Absolutely not. These people, all of these eight people, had a disease. It’s just that mistakenly categorizing them as having a mysterious new disease wasn’t fair. “
We asked Dr Marrero if he had seen the reports and he said, “I have seen some results and I wouldn’t want to comment on them. They were reviewing their autopsies; so I don’t know exactly what’s going on.
For Vautour, she is just hoping for a closure, and finally told us that she expects to receive it this week from Dr Marrero.
“Mom is already dead, it’s been over five and a half months and we just heard about the autopsy results. For me, it was way too long. Well, well, well, way too long.
News Today abc News Patients and families linked to potential mysterious brain disease speak to neurologist Dr Marrero